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Together we make an impact in patients’ lives and the future of healthcare World Bleeding Disorder Registry World bleeding disorder registry (WBDR) is the international platform for hemophilia treatment centers (HTC) around the world to collect data for patients with bleeding disorders. Hemophilia is a disorder in which the blood doesn’t clot normally because it lacks … Read more

Together we make an impact in patients’ lives and the future of healthcare SWIBREG, a RealQ® application The SWIBREG application is used in Sweden and Denmark, in Sweden it is also the national quality register for IBD care. Inflammatory Bowel Disease (IBD) patients can be symptom free for long stretches of time but can then relapse … Read more

Together we make an impact in patients’ lives and the future of healthcare InfCare HIV, a RealQ® application We have been working with the Swedish HIV community for more than 13 years, the collaboration is centred round the decision support system / quality register InfCare HIV. Physicians and nurses use the system to get a better overview … Read more

Together we make an impact in patients’ lives and the future of healthcare HepCare UK, a RealQ® application HepCare is a RealQ product especially tailored for the UK market. The development within the hepatitis C area has been enormously fast during the last years, patients who were dying in the disease are now free of the … Read more

Together we make an impact in patients’ lives and the future of healthcare Registry Study We were asked by a pharma company to evaluate adherence and retention for one of their therapies and to compare the results with the rest of the market. The Swedish national drug registry is almost unique in the world, it … Read more

Together we make an impact in patients’ lives and the future of healthcare Eliminating Hepatitis C Eliminating Hepatitis C – from pre-screening and sampling to treatment Finding and linking patients to healthcare is an issue for healthcare in several infectious diseases. An example of this is hepatitis C, a stigmatized disease causing thresholds for individuals in … Read more

Together we make an impact in patients’ lives and the future of healthcare Swedish needle and syringe programme The Swedish needle and syringe programme (NSP) is a social service that allows injecting drug users to receive sterile syringes, needles and injection tools, in the purpose to primarily prevent the spread of Hepatitis B and Hepatitis C … Read more

Together we make an impact in patients’ lives and the future of healthcare From horizon scanning to future/follow-up Create optimal national datasets based on existing infrastructure Sweden has a health-data system with great coverage, but which is highly heterogenous and fragmented. It is in some ways a reflection of the total health system but in the … Read more

Together we make an impact in patients’ lives and the future of healthcare FHabian, a Cascade Screening tool Finding and linking people at risk of familial hypercholesterolemia to care. Familial hypercholesterolemia (FH) is an inherited disease caused by a mutation in any of the three genes that affects the way the body handles cholesterol. FH causes … Read more